New Rules for “Do Not Substitute” Prescriptions

As of April 24th, all persons diagnosed with ALS who are prescribed Rilutek® (brand-name) will be switched to the generic form riluzole as per a RAMQ mandate, even if the medical Doctor’s prescription mentions “Do Not Substitute”.  In addition, renewed Rilutek® prescriptions already bearing the instruction “Do Not Substitute” will only be reimbursed until June […]

ALS Canada Supports the Government of Canada’s Decision to Extend the Compassionate Care Benefit to 26 Weeks

MARKHAM April 21, 2015/CNW – ALS Canada is pleased the Government of Canada has decided to  extend the Compassionate Care Benefit (CCB) from 6 to 26 weeks – a benefit that will directly provide much needed financial assistance to Canadian families caring for a loved one with the terminal disease, ALS or amyotrophic lateral sclerosis. […]

We Celebrate National Volunteer Week

To All Our Volunteers…Thank You! You help with our events, you play a critical role in our administration, , you immortalize our events by taking breathtaking pictures, you come to the office on a regular basis to perform a variety of administrative tasks, you provide a warm smile and support to a family in need […]

Chantal Lanthier et Jocelyn Théorêt

Jocelyn’s Story

Digging deep: finding strength It was as if someone had punched him in the gut. Jocelyn Theoret was stunned by the news his 46-year-old wife Chantal Lanthier had Amyotrophic lateral sclerosis (ALS). “I was frozen, mute. My wife was asking the doctor questions but I was doubled over in my chair. I couldn’t move not […]