Marc and Elyse’s Story

The ALS Society of Quebec has a Technical Aid and Financial Assistance Program to support its members. These programs help defray the cost of purchase or rental of equipment and services. Your donations will directly improve the quality of life of people with ALS and their caregivers. Click here to know more about our services. Here […]

Valosin-Containing Protein/ALS Connection Strengthened

Mutations in the gene for an enzyme called valosin-containing protein (VCP) are known to directly cause a disease called Inclusion Body Myopathy associated with Paget’s disease of bone and frontotemporal dementia. More recently, mutations in VCP have been associated with sporadic ALS in some individuals. To examine this association in more detail, the laboratory of […]

Statement from ALS Canada regarding dexpramipexole research results

Today Biogen Idec reported results from a Phase 3 trial investigating dexpramipexole (dex) in people with amyotrophic lateral sclerosis (ALS). The company said that the trial failed to show slowing of functional decline or improved survival and failed to demonstrate efficacy. Based on these results, the company is discontinuing development of dexpramipexole in ALS. Earlier […]

9th edition of the Fondation André-Delambre Symposium

From left to right : Drs. Steve Perrin, Stanley Appel, Nobel Laureate Stanley Prusiner and Jean-Pierre Julien Quebec City – The 9th Annual Symposium on ALS Fondation André-Delambre was held on September 20 and 21 at Laval University in Quebec City. The organizers of the Symposium, Jean-Pierre Julien and Jasna Kriz, had invited 24 internationally renowned […]