Raising awareness for ALS is an integral part of our mission. By communicating with the public through a range of different platforms, we succeed in educating and informing people—and, above all, breaking the taboos—about ALS. As with the many other communications released throughout the year, that was the goal of our Let’s Break the Ice campaign, launched as part of ALS Awareness Month in June 2016. Thank you to all families who continue to share their stories with us and with the media in order to keep the discussion going.
Chantal Lanthier opens up to Salut Bonjour
The moving interview shined a light on the impact that the viral Ice Bucket Challenge campaign had on research and revealed the changes that ALS has had on Chantal and Jocelyn’s lives since Chantal’s diagnosis in 2013. While the disease continues to march relentlessly on, Chantal is holding on to the things that mean the most to her:
“My positive outlook, my family, my friends, and my love for life.”
Neuro Partners submits its brief to the National Assembly
On November 9, 2016, Neuro Partners, an umbrella group of five organizations, advocated for the interests of more than 200,000 Quebecers living with a progressive neurological disease at Quebec’s National Assembly. Along with Parkinson Québec, Muscular Dystrophy Canada, the Federation of Quebec Alzheimer Societies, and the Multiple Sclerosis Society of Canada, the ALS Society of Quebec is very proud to have submitted a brief on ways to improve the quality of life for people living with a progressive neurological disease. Access to innovative medications, adapted housing, and support for caregivers were the central points discussed with the MNAs in attendance.
Love wins against ALS
The Society took advantage of Valentine’s Day to launch a communication campaign about the ability of love to conquer all, even ALS. Five Society members and their spouses generously agreed to share their love stories on social media to raise awareness about the impacts that ALS can have on a relationship and how love can sustain a couple through such a devastating ordeal.
“Don’t stop coming to visit us, talk to us, laugh with us, eat and celebrate with us. Don’t be afraid of those three little letters, even if you’re worried that you won’t know what to say”
-Michael Soles, former Alouette fullback, diagnosed in 2005