p16-assemblee-nationale

 

Raisingp16-en-break awareness for ALS is an integral part of our mission. By communicating with the public through a range of different platforms, we succeed in educating and informing people—and, above all, breaking the taboos—about ALS. As with the many other communications released throughout the year, that was the goal of our Let’s Break the Ice campaign, launched as part of ALS Awareness Month in June 2016. Thank you to all families who continue to share their stories with us and with the media in order to keep the discussion going.

Chantal Lanthier opens up to Salut Bonjour

p16-chantal-eve-marie-jocelyn-salut-bonjour

Two years after her first interview on Salut Bonjour during the Ice Bucket Challenge campaign, Chantal Lanthier dropped in again on the show’s host, Ève-Marie Lortie, with her husband, Jocelyn, and the Society’s Executive Director, Claudine Cook.

The moving interview shined a light on the impact that the viral Ice Bucket Challenge campaign had on research and revealed the changes that ALS has had on Chantal and Jocelyn’s lives since Chantal’s diagnosis in 2013. While the disease continues to march relentlessly on, Chantal is holding on to the things that mean the most to her:

“My positive outlook, my family, my friends, and my love for life.”

 

 

 

Neuro Partners submits its brief to the National Assembly

p16-assemblee-nationale

(From left to right): Nadine Prévost (MS), Nicole Charpentier (Parkinson QC), Louis Adam (MS), Josée-Lisa LeFrançois (Alzheimer QC), and Leigh Stephens (ALS QC) during their visit at the National Assembly.

On November 9, 2016, Neuro Partners, an umbrella group of five organizations, advocated for the interests of more than 200,000 Quebecers living with a progressive neurological disease at Quebec’s National Assembly. Along with Parkinson Québec, Muscular Dystrophy Canada, the Federation of Quebec Alzheimer Societies, and the Multiple Sclerosis Society of Canada, the ALS Society of Quebec is very proud to have submitted a brief on ways to improve the quality of life for people living with a progressive neurological disease. Access to innovative medications, adapted housing, and support for caregivers were the central points discussed with the MNAs in attendance.

 

 

Love wins against ALS

p16-alain-lovewinsen

Alain Bérard, who has ALS, and his wife, Dominique Racine, generously agreed to be featured in the campaign.

The Society took advantage of Valentine’s Day to launch a communication campaign about the ability of love to conquer all, even ALS. Five Society members and their spouses generously agreed to share their love stories on social media to raise awareness about the impacts that ALS can have on a relationship and how love can sustain a couple through such a devastating ordeal.

 

 

 

 

 

p16-en-michael-soles

“Don’t stop coming to visit us, talk to us, laugh with us, eat and celebrate with us. Don’t be afraid of those three little letters, even if you’re worried that you won’t know what to say”

-Michael Soles, former Alouette fullback, diagnosed in 2005